Emma

Emma was born with Coffin-Siris Syndrome and agenesis of the corpus callosum, a rare congentital birth defect. From the very beginning, her family knew the road ahead would be challenging. Over the years, she has faced severe gastrointestinal complications, undergone multiple exploratory surgeries, and lives with a rare neuromuscular disorder that remains undiagnosed.​

Through it all, Maria Fareri Children’s Hospital has been there to provide high-quality innovative care. From complex procedures to everyday support, her care team has been by her side—especially in the PICU. Last year, they threw her a birthday party in the hospital, complete with balloons, cake, and smiles all around. Before COVID, they even welcomed her whole family—nearly 15 people—for holiday meals around her hospital bed.​

Now 22, Emma loves amusement parks. She and her family are excited to come to D.C. for #FAD2025 with #TeamCHA to share her story and highlight why #MedicaidMatters.​